#NotJustFatigue

The mission of the 501(c)(3) #NotJustFatigue is to speak the truth about ME/CFS through creative content that’s deeply personal and unapologetically emotional. Via film, photography, storytelling, and interactive experiences, we aim to connect with people in a way that medical and political rhetoric cannot. We want to confront a long history of neglect, bring those with the disease out of the shadows, and forge a path forward. Together, we can reclaim the narrative around ME/CFS.

Our Founder, Elizabeth Ansell, had suddenly developed very severe ME/CFS and spent 2.5 years unable to speak or move. When she improved, she promised herself she would speak about the disease.

Separately, she struggled to describe her illness to friends and family. She started to envision a website she could direct them to that would explain the ME/CFS experience. Through an animated historical timeline, a photo documentary series with quotes, social media shares, extensive references, a Q and A, a ten part docuseries, and a short film, the website is a comprehensive look at the disease in a digestible, creative way.

We wanted to begin educating the general public on ME/CFS through a variety of ways on a website that they could always access.